Managing Everyday Symptoms

To manage day to day symptoms:

  • Keep hydrated: pale yellow/straw coloured urine
  • Elevate the head end of your bed, so you're not sleeping fully horizontal
  • Take care with temperature of bath/ shower, not too hot.
  • Experiment to see if having a shower or bath before bed rather than in the morning makes fatigue easier to manage and may also assist with sleep due to core body temperature gradient.
  • Try wearing support tights or other forms of compression clothing, to improve blood flow in your legs. Some GPs may be able to prescribe pressure garments of 30mmHg pressure which ideally needs to go waist high.
  • Avoid long periods of standing. If you need to stand in a queue crossing your legs, gently rocking from toes to heels or shifting weight from one leg to another can be helpful.
  • Allowing time in your morning routine to rise slowly after lying down; perhaps sit up in bed, drink a glass of water and perform ankle pump exercises.
  • Avoid drinking lots of caffeine or alcohol. Caffeine stimulates the nervous system and alcohol is a vasodilator exacerbating POTS symptoms.
  • Include more salt in your diet, however this is not advisable if you have high blood pressure or kidney or heart disease
  • Exercise: calf muscle strengthening exercise.

YouTube video explaining management of POTS